NATIONAL FRAGILE X AWARENESS DAY
Fast Facts
- WHEN
- July 22nd since 2000
- CREATOR
- U.S. Senate created the day in 2000
- WHY
- To raise awareness about Fragile X and support finding a cure
- VIBE
- Informative, educational
NATIONAL FRAGILE X AWARENESS DAY
Each year on July 22nd, National Fragile X Awareness Day shines a light on those impacted by Fragile X syndrome. The day also raises awareness to support research and education around Fragile X.
#FragileXAwarenessDay
Fragile X syndrome is a mutation of the FMR1 gene and is the most common form of inherited intellectual disability. It impacts men more than women, and while a person may have the gene mutation, sometimes they do not have any apparent signs. Those who do show signs may have mild or severe symptoms. Physical, intellectual, and behavioral symptoms may appear and will vary between males and females. Women tend to have similar but milder symptoms or none at all.
Signs and Symptoms of Fragile X
Attention Deficit Disorder, Attention Deficit Hyper Activity Disorder, autism, anxiety, poor eye contact, sensory disorders, hand-biting or flapping, aggression.
Learning disabilities
Elongated face and ears
Soft skin
Macroorchidism or large testicles
Connective tissue problems impacting ears, feet, joints and palate
Very social
Testing and treatment are available, but because there is no cure, more research is needed. Through raising awareness, the day hope to further the search for a cure. National Fragile X Awareness Day takes place during National Fragile X Awareness Month to further highlight the importance of supporting families and finding a cure.
6 WAYS TO SUPPORT NATIONAL FRAGILE X AWARENESS DAY
Celebrate the families impacted by Fragile X. Show your support by learning more about Fragile X. Other ways to participate include:
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Families can download and print Fragile X awareness cards here.
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Donate to support research and education surround Fragile X.
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Attend webinars or seminars about Fragile X.
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Organize a fundraiser to raise money for a Fragile X organization or an organization who assists people with Fragile X.
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If you have or know someone who has Fragile X, share your experiences with others.
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Start a conversation about social media using the hashtag #FragileXAwarenessDay.
NATIONAL FRAGILE X AWARENESS DAY HISTORY
In 2000, the U.S. Senate passed a resolution naming July 22nd National Fragile X Awareness Day. The following year, the U.S. House passed a resolution also in support of the day. Both resolutions urged the day. National Institutes of Health, the CDC, and researchers around the globe join together to find a cure.